tag:blogger.com,1999:blog-7588048010724824782024-02-06T20:50:41.670-08:00SodTheCancerJulie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.comBlogger37125tag:blogger.com,1999:blog-758804801072482478.post-39121784880751671532015-06-12T02:20:00.001-07:002015-06-12T02:26:18.646-07:00So...... this is how it is<div class="separator" style="clear: both; text-align: center;">
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So ..... having had around three weeks or more to get to grips with the latest news, it's been a bit of a wierd time to say the least. Chemo not worked, nothing more than can be done and prognosis not too bright but there are rainbows to come out of all this mess.<br />
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I'm feeling better than I have done for a long while, I look pretty ok (so I'm told every day) and life now revolves round doing what we want, when we want and however we want. Without the weekly/fortnightly constraints of travelling to London, our weeks are now free to fill with fun stuff around Kev's work and filling it we are!<br />
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Our patio area has been totally transformed, just as I wanted it, into a place where we all congregate and have fun. At night, the new solar lighting makes it look like a fairy wonderland and I LOVE it! We've re-done our bedroom and it's now light and airy and we've sorted new appliances in the kitchen.<br />
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There is now more laughter than tears, although there are still days when black clouds loom and it all gets too much. But that's normal and it's a case of going with the flow and wait for it to pass.<br />
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But apart from these small material changes, which in the scheme of things aren't that important, it all boils down to how we are now living our lives. I don't look at it as being terminal, I look at it as living with cancer and enjoying every damn moment I am given.<br />
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Cancer does a pretty shitty job of wrecking lives and it's hard to believe the extent of the hurt and pain it causes but the crap has made our family even stronger and closer than it was before. I've always made it clear that I want life to carry on as normal, so I'm kept busy for as much of the day as I can - and a quick rest will usually get me back to where I want to be!<br />
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Cancer can take a running jump as far as I'm concerned, it's already taken too much of my precious time and having kicked its butt for the last year or so, I'm not giving it the satisfaction of having the last word! <br />
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Life is for living and I've told my lot in no uncertain terms that this is how it will be and they'll only be doing me a disrespect by not going out there and living their lives to the full.Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-52912448800355038482015-05-17T04:57:00.003-07:002015-05-17T04:57:40.161-07:00Begone, damn pain ...Just when I thought things are ticking along nicely, no pain for a week, the old diseased offal decides to let me know who's boss of this whole cancer malarkey. Was fine yesterday, went to see parents, called into a couple of shops then home. Kev set to cook curries so I decide to help by making fresh raita. I've only just started chopping up the mint when the old familiar pain starts in my side and the next thing I know, I'm doubled up in agony, not knowing what to do and breathing like a stuck pig! Kev manages to get me upstairs to bed but it takes a good few minutes for me to actually make it onto the bed, such is the pain. Once there and a good dose of morphine sees me drift off for the rest of what's left of the afternoon. Manage to crawl down for some curry but as it hurts to stand, sit or lie, can't get comfortable. I manage to last out on the settee until 10.00 pm then crawl back up to bed for more morphine and the hope of some sleep.<br />
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No such luck. Kept awake most of the night and finally drift off at 3.30 am only to be woken at 4 by Ellie who wants to go out into the garden!<br />
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Needless to say, I drift back off and stay in bed til late morning until hauling myself downstairs. Such fun weekends we have chez Maison Atkins but just hoping this pain has gone before we set off for London on Tuesday again .......<br />
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<b>Interesting fact</b>: since I was diagnosed, I've not been able to eat liver. Used to love the stuff, especially with onions but it's been off the menu here for over a year ....... Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com1tag:blogger.com,1999:blog-758804801072482478.post-90053162157531289612015-05-15T07:24:00.001-07:002015-05-15T07:34:58.103-07:00PICC line 0 - DN 1<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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" style="margin-left: auto; margin-right: auto;" /></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Looks pretty harmless, eh?</td></tr>
</tbody></table>
Usual Friday PICC flush and dressing change. Has to be one of the most cringeworthy parts of my cancer care - particularly when the Tegaderm sticks week after week to the line and stings like buggery when it's time to come off. Today was better - my lovely district nurse/friend/past work colleague (you know who you are) got it off in record time with only a hint of a sting! Sigh of relief, all over until next week :( <br />
<br />
Back up to the Marsden on Tuesday for my next CT scan, to see how the new chemo drug's been performing, followed by full day of chemo fun on Wednesday. Our consultant did warn us that the main event liver sarcoma would probably grow but that this was normal. Hoping the lung tumours might have played fair and shrunk but we shall see. Keeping fingers crossed for good news.<br />
<br />
At least this week, the nausea has finally gone and my appetite is almost back to normal. And no pain for a few days, so bonus week so far. <br />
<br />
Still, all that could change tomorrow. Taking each day as it comes is now part and parcel of our life. I say "our" because it not only affects me, it affects Kev and the rest of our family. No planning ahead for the weekend for us, it's a case of seeing how I am and we'll go from there!<br />
<br />
<br />Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-66727735080270303412015-05-11T06:54:00.000-07:002015-05-17T04:39:21.746-07:00Unsung heroes (and heroines)<div id="fcbk_share">
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<img alt="superheroes" class="alignleft size-thumbnail wp-image-3493" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/05/superheroes-150x150.jpg" height="150" width="150" /></span></a>Over the weekend, as I struggled with some pain from the offending
damaged offal (AKA my liver), and was forced to rest, I watched yet
again as my other half moved seamlessly from one household job to
another as he has done for the last year. He’s taken on the care of
both house and inhabitants cheerfully and without a moan, whilst
continuing to run his businesss, giving me the time to recuperate and do
the relaxing things I want to do during the day. I try not to express
any particular wishes as he’ll inevitably conjure them up (as per the
veg planters this weekend; my passing comment about growing some veg
again in pots resulted in a whole patio of brilliant planters!) During
my worst days, when I’ve lost both my appetite and tastebuds, Mr A has
cooked no less than three dinners in one evening in an effort to find <i>something </i>I could eat and enjoy. That’s love for you.<br />
<br />
From Land’s End to John O’Groats and indeed, around the whole
continent, there are people who are unselfishly caring for loved ones,
day in and day out, without a second thought. They do it out of love
and without them, people like myself wouldn’t be able to enjoy day to
day life in the way we can.<br />
<br />
Being at home, Nathan gets to see all the crap stuff (sorry Nathan
xx) and does all he can to make sure I’m ok. Leah and Hannah provide
all the support I need and are there at the drop of a hat and there are
no words to convey how much our children mean to us during this
rollercoaster ride. How people manage without a family behind them,
I’ll never know and my heart goes out to them. I know I couldn’t go
through this without the love and support I’ve had from day one. When
we said our vows back in 1980, who could have envisaged that “in
sickness and in health” would come to mean so much?<br />
<br />
So, to all those unsung heroes and heroines out there, know that you’re appreciated for everything you do and thank you ……Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-85841353500569134352015-05-06T06:53:00.000-07:002015-05-15T07:05:07.327-07:00The C Word - Lisa Lynch<div id="fcbk_share">
<div class="fcbk_like" style="width: 150px;">
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<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/05/c-word.jpg">
<span class="pibfi_pinterest ">
<img alt="The C Word" class="alignleft size-thumbnail wp-image-3481" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/05/c-word-150x150.jpg" width="150" />
</span>
</a>You might have watched “The C Word” on BBC1 the other night, the
drama based on real-life blogger and cancer sufferer Lisa Lynch, who
sadly lost her fight with cancer a couple of years’ ago. If you haven’t
had chance to watch this, grab it on catch up or read her book. Lisa
had a hard-hitting approach to her illness, she pulled no punches and
told it like it was on her blog, which she used to vent her feelings
about her illness.<br />
<br />
I was unsure whether I wanted to watch it at the moment, as I knew it
would be so near the knuckle but I’m so glad I did. Parts of the drama
were like watching a re-run of our own life over the last few months,
with all its shitty bits. Nothing can prepare you for life after your
diagnosis and Lisa never set out to be a hero, she raged and also joked
her way through the whole sad experience. The world was a better place
for having heard Lisa’s voice and it’s a testament to her that her book
is handed out to cancer sufferers to help them cope.<br />
<br />
Since my second cycle of Trebectedin a week ago today, I have to
admit I’ve struggled with constant nausea and sickness and complete
fatigue/lethargy. No energy for anything other than sleep. Everything
has been an effort, from sitting up to lying down, to trying to force
food down, to finding something to drink that doesn’t make me heave.
Eating’s been an ordeal and Kev has produced any number of tasty meals
to try and tempt me into eating, including making home-made soups which I
eat loads of on a normal day to day basis. Normal – now who am I
kidding? Since when was the last time we had a normal life??<br />
<br />
So, a week on and only today am I beginning to feel half human
again. Not sure whether I look anything like human, I steer clear of
the mirrors on days like these. I was still struggling to find anything
I wanted to eat but yesterday, I had a sudden craving for vegetable
juice. Last year we bought a juicer as it’s been proved that fresh
juices help your immune system and help combat cancer cells. Kev was
pleased I actually fanced something, so off he went to stock up on veg
for me. Beetroot juice has become my new fave, can’t get enough of it!<br />
<div class="wp-caption alignleft" id="attachment_3484" style="width: 160px;">
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/05/earle.jpg">
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<img alt="Squeeze those veg!" class="size-thumbnail wp-image-3484" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/05/earle-150x150.jpg" width="150" />
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Squeeze those veg!</div>
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<br /></div>
</div>
So today has been ok, I’ve managed lunch AND dinner and have given
Kev a bit of stick so he knows I’m on the mend. I’ll keep on with the
veg juices and hope I’m back up to scratch before heading off to the
Marsden in a couple of weeks for the next round ……..<br />
<br />
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Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-51743060584155951252015-04-28T06:51:00.000-07:002015-05-15T07:05:07.295-07:00The Curly WordThis C word is one that’s sadly crept into our vocabulary over the last few months, much to my disgust ….<br />
<br />
Anyone who knows me will know that with regard to swearing, <em>that </em>particular
C word is a no-no! But the new C word in our home is guaranteed to get
my back up – and it’s all related to hair. Yes, hair.<br />
Last early summer, I lost my hair thanks to the wonderful chemo
treatments and resembled a newborn mole. Come late summer and after a
few cycles of the new aggressive chemo drugs, my hair follicles decided
they’d had enough of hibernating and sprang to life! I’ve spent the last
few months nurturing this new head of hair, albeit now a totally
different shade and texture. It’s soft and – well, ok let’s get to the C
word then ….<br />
<br />
Curly. There, it’s out. CURLY! The one word that’s guaranteed to get
my goat! And doesn’t Kev know it ……. and it’s his new nickname for me
(when he can get away with it). All my life I’ve battled against a kink
in my hair that resembles the hind leg of a donkey, with blow drying and
the my-couldn’t- do without GHD’s. And now I’m here with a new head of
hair and nature has decided to give me a totally new makeover with
CURLS! Thank god I don’t actually look like Shirley Temple …..<br />
<div class="wp-caption alignleft" id="attachment_3352" style="width: 160px;">
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/04/image.jpg">
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<img alt="Mine aren't this bad thank god!!" class="size-thumbnail wp-image-3352" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/04/image-150x150.jpg" width="150" />
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Mine aren’t this bad </div>
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thank god!!</div>
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I’m so grateful to have hair again, in whatever colour, texture and style. But pleeeze – curls at my age??<br />
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Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-20261224040870362222015-04-23T06:47:00.000-07:002015-05-15T07:05:07.268-07:00I've got a new friend who's very attached to me ....It’s
been a month or so since I last updated my site and apologies for
this. So, the latest …. the CT scan I had back in March showed that the
tumour in my liver had grown again and tumours had decided to rear
their ugly heads again in my lung. So, onto a new chemo schedule. This
time, a little easier on me as it’s a three weekly cycle and this
particular beauty involves a 24 hour infusion via a pump into my PICC
line (oh yes, the PICC, more about this in a minute) which is then
disconnected here at home.<br />
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<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/04/FullSizeRender.jpg">
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</span>
</a><div class="wp-caption-text">
My new friend ……</div>
<div class="wp-caption-text">
<br /></div>
</div>
Well, it was certainly a case of trial and error how to deal with a
heavy canister dangling from the line into my arm. As we are still
staying up in London after it was administered, going down to dinner
with this is fun. It ends up in my bag and has to sit on a chair right
next to me, getting star treatment. Getting undressed etc is fun,
needless to say! Travelling home on the train proves noteworthy too, as
my bag obviously can’t move too far away from the end of my arm!! God,
the things I have to do ….. Hopefully, this new drug will help shrink
the tumours again and stabilise everything. Fingers crossed …<br />
<br />
Yes, the PICC line ….. when my oncologist informed me that my new
chemo regime was to be every three weeks, it was like, yay, then he hit
me with the fact that this drug could only be administered through
either a PICC line or a port. Didn’t fancy the port, especially as it
involves a general anaesthetic putting it into your chest, so the PICC
it was. I clearly remember putting my head in my hands and groaning
when this was decided – having had so much trouble with the line last
time around, I didn’t fancy a repeat performance.<br />
<br />
Having had the PICC in now for just under a month, it’s already
showing who’s boss. Firstly, it took over three hours to get one
inserted, as the site of my old line wouldn’t play the game after three
attempts, so it had to be put into my right working arm. It’s been ok,
just didn’t want to play when it was time for the DN to try and take bloods and having the dressing changed was still as cringworthy as it always was.<br />
<br />
Oh well, onwards and upwards – back up to the Marsden next week for
the next round and two days up in the Smoke with Mr A. Just wish it was
for more fun reasons that visiting a cancer hospital!!!!Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-19414437042103582202015-03-12T06:45:00.000-07:002015-05-15T07:05:07.265-07:00Ah, home (but which one?)Back
up to our second home from home, the Premier Inn, Earls Court and its
great staff. Check in far earlier than is allowed which is great as we
can relax. We head out to Tower Bridge and I take piccies of good old
Shaun the Sheep who’s set up home there at the Tower.<br />
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</a><br />
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</span>
</a><br />
By the time we head down to dinner, I’m already dog tired but
gamefully manage to down a gin and tonic before dinner, plus a small
glass of red during! Not long after we’ve eaten, the fatigue gets the
better of me so I have to head back to our room, ready for bath and bed
before my head hits the table like it did once before.<br />
<br />
London today is beautiful – a bright sunny spring day which certainly
seems to put a smile on the public’s face for once! Our trip to the
imaging department at RM goes completely to plan; straight in, cannula
inserted and then in for the scan. Nice to have another date with my
Stargate friend …. <a href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/04/ct-scanner.jpg">
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<img alt="ct scanner" class="alignleft size-thumbnail wp-image-3177" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/04/ct-scanner-150x150.jpg" width="150" />
</span>
</a><br />
<br />
<br />
<br />
Leaving the building down the iconic steps seen so often on tv, we
spot a vacant taxi, which has also clocked us and hailed it. In less
than ten minutes, we are back at Victoria Station and onto a home-bound
train home sweet home, until we return in 10 days’s time for the results – the one part I hate with a passion.<br />
<br />
Much as we try and make the best of our trips to the Marsden,
enjoying the “couple time” we get, it’s always so nice to get home
again!<br />
<br />
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-20502600919748290492015-03-11T06:40:00.000-07:002015-05-15T07:05:07.271-07:00Back in Lenny Henry's bed!!<div id="fcbk_share">
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<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/image.jpg">
<span class="pibfi_pinterest ">
<img alt="image" class="alignleft wp-image-3308 size-thumbnail" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/image-e1426189997289-150x150.jpg" width="150" />
</span>
</a>So here we are, back up in Earl’s Court, ready for CT scan tomorrow
at the Royal Marsden. It doesn’t seem five minutes since we were last
here.</div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
Kev certainly got straight back into the
swing of things by rapping at least two lots of ankles – well if you
stand in the middle of a busy Underground looking gormless, it’s bound
to happen! </div>
<div style="text-align: left;">
<br /></div>
<div style="text-align: left;">
Getting the results of scans are one of the things I hate most about all this crap. Sitting there waiting for your consultant to come in, with either encouraging news or not, as the case may be. We;ve been lucky in that virtually all our news following scans have been positive but there will come a day when the news won't be so good and we have to be prepared for that. Until then, I'll sit on the edge of my chair, like a naughty schoolgirl, waiting for the bearer of good/bad news to come through the door ...... </div>
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</div>
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Anyway, relaxing now in Lennie Henry’s bed before heading down for a welcome Happy Hour and dinner ……</div>
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/IMG_4084.jpg">
<span class="pibfi_pinterest ">
<img alt="IMG_4084" class="alignleft wp-image-3444 size-thumbnail" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/IMG_4084-e1430923957871-150x150.jpg" width="150" /></span></a>Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-68749556779688680272015-03-10T06:39:00.000-07:002015-05-15T07:05:07.316-07:00Kev's Planet<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/kev-chef.jpg"><span class="pibfi_pinterest ">
</span>
</a>
<br />
<img alt="kev chef" class=" wp-image-3288 size-thumbnail alignleft" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/03/kev-chef-e1425996917802-150x150.jpg" width="150" />This time last year, Kev was a Facebook novice; he’d be the first to
admit he had virtually no idea what he was doing when he logged onto his
account which we set up for him! Then, during the spring when we
discovered I had cancer, he was inundated with family and friends all
wanting to know the up to date situation and he decided the easiest way
to do this was to post regularly on his Facebook page.<br />
<br />
All through the long summer months when we were travelling up to
London three weeks out of every four for my treatments, Kev continued to
update everyone via FB with his witty, sometimes irreverent and always
honest opinions and thoughts until I suggested that he should start his
own blog. After all, what he was doing already was blogging and it
needed its own platform. So<a href="http://kevsplanet.com/"> www.kevsplanet.com</a>
was created and now Kev has an outlet for his thoughts and opinions,
which I think he finds cathartic at the very least. He’s quickly got the
hang (almost) of the WordPress set up and spends a lot of his time tapping away on his laptop and I’m so pleased he’s found a way to
express himself which he can also share with others, particularly his
love of cooking.<br />
<br />
With our return to London this week again, I’m sure Kev will have
plenty to blog about as we enter a new phase in our battle against this
awful disease which has torn shreds out of our family. Hope you’ll come
along the ride …..<br />
<div class="post-3273 post type-post status-publish format-standard hentry category-kickin-cancers-butt tag-cancer tag-leiomyosarcoma tag-royal-marsden tag-treatment" id="post-3273">
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<div class="post-3240 post type-post status-publish format-standard hentry category-kickin-cancers-butt tag-balancing-blooms tag-chemo tag-lanolips-lemonaid tag-nail-polish tag-organix-coconut-water-shampoo tag-sally-hansen" id="post-3240">
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Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-79852151075127210982015-02-27T06:37:00.000-08:002015-05-15T07:05:07.324-07:00A Year on .. Happy birthday Nathan! xxx<div id="fcbk_share">
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So, it’s a year exactly today, on our son’s
birthday, since I was finally admitted to hospital after over two years
of illness. So much has happened since then but I can remember each and
every step of the long journey I’ve had to take, a journey I wouldn’t
wish on my worst enemy.<br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/image1.jpg">
<span class="pibfi_pinterest ">
<img alt="image" class="alignleft size-thumbnail wp-image-3275" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/image1-150x150.jpg" width="150" />
</span>
</a>Who would have guessed after I’d been admitted and thought I was
finally going to see an end to my problems that in reality, they were
only just beginning? It’s the kind of case scenario you read about and
hope never happens to you but when it does, you have options. Once the
sheer shock of what was happening had abated, I was adamant that I would
NEVER give in to this awful disease, that I would fight tooth and nail
to give myself the best chance, no matter what treatment or procedures I
would have to undergo.<br />
<br />
Even so, had I been able to foresee exactly what I would have to go
through, I might have panicked slightly but luckily, no crystal balls
are available and so I’ve had to take each step as it comes.<br />
No words are enough to thank the wonderfully caring staff at the
Royal Marsden in Chelsea. They’ve filled our long, stressful visits with
kindness, humour, truth and above all, a calming sense that all that
can be done WILL be done.<br />
<br />
After a break from chemo, which has given me time to gather my
strength both physically and emotionally, I’m ready to return to the RM
shortly to find out what the next steps are for me.<br />
<br />
All I know is that I wouldn’t have got this far without the love and
support of my family and close friends. I’m so proud of the way you’ve
all handled such a hard, distressing year and I love you all. Xx<br />
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Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-71510000982069905242015-02-25T06:35:00.000-08:002015-05-15T07:05:07.319-07:00Look Good, Feel Better afternoon<div id="fcbk_share">
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</div>
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<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/th1.jpg">
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<img alt="th" class="alignleft size-thumbnail wp-image-3261" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/th1-150x150.jpg" width="150" />
</span>
</a><br />
Spent yesterday afternoon over in the MacMillan Centre at QA Hospital
with a group of ladies, attending the Look Good Feel Better workshop.<br />
<br />
“<strong>Look Good Feel Better</strong> is the only worldwide cancer
support charity, providing practical support for women struggling with
the side effects from cancer treatment.<br />
Finding out you have cancer is daunting and life-changing and the
added stress of the appearance related side effects of treatment can be
demoralising and very hard to cope with. This can have serious
consequences on self-esteem and confidence at a time when a positive
attitude is very important.<br />
<br />
Look Good Feel Better is dedicated to improving the self-esteem,
confidence and wellbeing of people undergoing treatment, for any sort of
cancer”<br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/photo-21-e1424813671907.jpg">
<span class="pibfi_pinterest ">
<img alt="photo (21)" class="alignleft size-thumbnail wp-image-3259" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/photo-21-e1424813671907-150x150.jpg" width="150" />
</span>
</a>Despite everyone there being in the throes of cancer treatment and
all the baggage that goes with it, the afternoon was filled with
laughter as we all dug into our huge goody bags of different high class
products and learnt how to get ourselves looking (almost) how we used
to be …….<br />
<br />
I was chuffed to get a bottle of Emporio Armani “Diamonds” EDP in my bag; what a great scent!!<br />
Anyone who’s suffering from cancer can book themselves onto one of
the LGFB afternoon workshops, just contact your nearest MacMillan
Centre.Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-91741236293430449952015-02-23T06:34:00.000-08:002015-05-15T07:05:07.333-07:00Coconut water shampoo?? I'm in my element!<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/coconut-shampoo-e1424710664758.jpg"><span class="pibfi_pinterest ">
</span>
</a>
<br />
So …… finally back to “proper” hair washing and although it’s a bit
of a novelty at the moment, can’t say I’ve really missed all the hair
care palaver over the last few months, to say nothing of the money
saved!! But hair’s arrived so it must be nurtured and looked after.<br />
<br />
Was chuffed to find this latest Organix shampoo in Boots today; not
only are Organix one of my favourite shampoos but to find a coconut
water bubbly was great! Those who know me know I LOVE coconut products
and will always walk the extra mile to get a bottle of pure coconut
water – walking round with said smell on my head will please me indeedy
……<br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/julie-feb-2015-e1424713070369.jpg">
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<img alt="julie, feb 2015" class="alignleft size-thumbnail wp-image-3245" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/julie-feb-2015-e1424713070369-150x150.jpg" width="150" />
</span>
</a><br />
<br />
Dame Judy Dench, I can give you a run for your money …….<br />
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-58613164546598687232015-02-21T06:32:00.000-08:002015-05-17T04:44:34.292-07:00Spring update<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/snowdrops.jpg"><span class="pibfi_pinterest ">
</span>
</a><br />
<img alt="snowdrops" class=" size-thumbnail wp-image-3235 alignleft" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/snowdrops-150x150.jpg" height="150" width="150" />It’s been a while since I last blogged on my site so here’s the
latest updates: my chemo was doing well and had shrunk my tumours
considerably but back in October, I was rushed to hospital, unable to
breathe and in a lot of pain. Turns out the chemo had caused some damage
to my lung and resulted in me staying in hospital for a week, with
blood transfusions and CT scan. I know I was extremely ill and it wasn’t
a good time for me or our family. I was informed that if I hadn’t have
gone to A & E, I would probably have died …. that’s the second time
last year. Not good. However, back up to Royal Marsden for a follow-up
re. the scan results and it was decided together that I wouldn’t start
chemo again for a couple of months, to allow my poor old lung to
recuperate!<br />
<br />
So, I’ve been on a break from chemo since October and how great has
that been! Tastebuds and appetite back to normal, fatigue all but gone
(although I still get very tired each day) and best of all, my hair has
grown back, presenting me with my new look, that of a Judy Dench
look-alike!!! Being off the chemo does have its drawbacks, however, as
I’m constantly aware in the back of my mind that things could be
progressing in a way I don’t want.<br />
January 3rd, however, saw me back in A
& E, delivered by ambulance this time, with severe pain in my liver
area. It was a repeat of the pain I had last summer and believe me, I think I'd rather have labour pains - at least you get something at the end of those! Bloody unbearable pain which literally took my breath away and was pretty scary. The ambulance crew gave me Entonox (see, the parallel with labour again!) which helped and then onto the lovely morphine, which, once it kicked in, did the job.<br />
<br />
Bloods showed that I could be suffering from an aneurysm or a
kidney stone, so it was off to the CT scanner again! Both ruled out but
follow-up at RM recommended, which we did and scan showed slight growth
in the liver tumour but our consultant stated that nothing drastic would
happen in the space of a couple of months before March so have to go
along with that way of thinking. Chemo still off the cards until March
at least, so I’m kind of living in a bubble at the moment, just waiting
to see how things pan out.<br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/photo-5.jpg">
<span class="pibfi_pinterest ">
<img alt="photo (5)" class="alignleft wp-image-3231 size-thumbnail" src="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/photo-5-150x150.jpg" height="150" width="150" />
</span>
</a><br />
But there has been some good news (apart from my hair!) On January
28th, Leah and Si presented us with our third gorgeous grandson, FREDDIE
OWEN MUSTOE, at 12.04 am weighing in at 8 lb exactly.<br />
<br />
Also, my nails, which had suffered so badly from the chemo, have also
had chance to recuperate and are looking a whole heap better (although
they are still slightly ridged and break sooo easily!) I’m still
applying the Trind Kerotin, although not every day but it seems to have
worked so I’ll stick at it. <br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2015/02/photo-2.jpg">
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Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-43035393163381727472015-02-18T06:30:00.000-08:002015-05-15T07:05:07.289-07:00Chemo nail rescue!<div id="fcbk_share">
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<img alt="My poor decimated nails!" class="size-thumbnail wp-image-3206" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/11/image2-150x150.jpg" width="150" />
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My poor decimated nails!</div>
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One of the annoying side effects from the chemo I’m getting (
Gemcetibine and Docetaxel) is the damage I’m now seeing to my nails.
Researching online, it seems the Docetaxel could be the main culprit but
having a double whammy dose of chemo probably doesn’t help matters.
Having spent sooo long getting my nails up to par (if you’ve read my
earlier posts you’ll know I’ve battled with nail biting for years up
until a couple of years ago when I decided enough was enough) and to
watch my hard work go down the drain as the drugs took hold has been a
bit of a blow. Still, never one to sit down and give up, I’ve researched
chemo nail care and delved into products which could help restore my
nails to some sort of normality. Hopefully, this might help some of you
in the same position.<br />
Re-hydration is my main aim as my nails have gone so dry, despite
using cuticle oil by the gallon. The white bits have gradually crept
down my nails but strangely enough, just on both ring fingers! I’m not
sure what I can do about those though …..<br />
<br />
I’ve had no problem growing my nails throughout my ongoing chemo
treatment – in fact they’ve grown like mad. I read that some people lose
their nails due to Docetaxel so I guess I’m lucky in that respect.<br />
I read some great reviews on the Swiss TRIND products and decided t0<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/11/image-e1415620630817.jpg">
<span class="pibfi_pinterest ">
<img alt="Nail Balsam & Nail Repair" class="size-thumbnail wp-image-3203 alignleft" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/11/image-e1415620630817-150x150.jpg" width="150" />
</span>
</a><br />
give them a whirl – after all I’ve got nothing to lose but healthy
nails to gain. The two products I plumped for were the Nail Balsam and
Nail Repair and then their Keratin Nail Restorer and Keratin Nail
Protector. I’ve had the first two products for about a week now and the
latter have just arrived. Whilst ferreting around online I was reminded
that nails are basically made of keratin and that restoring your nails
to health meant restoring the keratin levels. Having seen that TRIND
also have keratin products I went and checked these out and decided that
having some extras in my arsenal wasn’t a bad thing.<br />
<br />
Using the products is easy: you simply apply a coat of the Balsam to
clean, dry nails and leave for two minutes to soak in, then gently rub
any excess into your nails. I can see my nails absorbing the balsam!
Then, you apply a coat of the Nail Repair and allow to dry. This helps
seal in the balsam and helps strengthen your nails. Each day, you
simply remove the products with a non-acetone polish remover and start
the two-step process again.<br />
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<img alt="Trind Keratin Nail Restorer & Nail Protector" class="wp-image-3208 size-thumbnail" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/11/image3-e1415622041765-150x150.jpg" width="150" />
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Keratin Nail Restorer & Nail Protector</div>
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Already I can see some improvement in the condition of my nails and
they are definitely more hydrated. On first applying the Keratin Nail
Restorer, I’m really impressed at how quickly it’s absorbed and how
incredibly soft and smooth my nails feel, even after one shot. I’ve left
off applying the Nail Protector for a few hours as I want to apply some
more of the keratin goodness throughout the day.<br />
<br />
The keratin products are formaldehyde free although the Nail Repair
does contain this. I’m not a fan of formaldehyde but on this occasion,
I’m prepared to overlook this if it means my nails stand any chance of
getting back to how they were pre-chemo!!Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-29099671914274445172014-11-11T06:25:00.000-08:002015-05-15T07:05:07.277-07:00November update<h3 class="post-title entry-title" itemprop="name">
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Well, it's been a little while since I updated here but unfortunately,
I've been pretty unwell and haven't felt like dragging out the laptop
and tapping away. There's been some good news and some setbacks: a CT
scan I had a few weeks' back showed that the chemo was doing its job and
the tumour in my liver had shrunk. Good news indeedy but this was
overshadowed last month when I had to go to A & E as I was having
trouble breathing and could hardly walk. The breathlessness had been
creeping up on me for several weeks but as I knew it was a side effect
of the chemo, I must admit, I didn't stress out too much about it at the
time. Ok, so I was very very tired all the time and had no energy for
anything other than the necessaries. Our trips up to the Marsden had
become a trek for me and whereas I had been able to walk the 30 minutes
from our hotel to RM, taxis were now the order of the day, both there
and back. I had trouble walking short distances, getting seriously out
of breath and feeling like crap!<br />
<br />
I had to stay in hospital for a week, as the doctors tried to work out
what was wrong. A blood clot on my lung was one possibility, as was
neutropenia (a killer for cancer patients if not caught in time) but a
week of daily blood tests (well done PICC line for all your sterling
work there!), lovely antibiotic IV's and a CT scan revealed no clot,
thank god, but obvious damage to my lung, probably caused by the chemo.
Having missed a complete chemo cycle, we traipsed back up to London
having been pre-warned that I probably wouldn't be having chemo and
that's exactly what has happened. I'm having a break for a few weeks to
allow my lung to heal, but the CT scan showed that the tumour was still
shrinking and the mets in my lung had all but dissipated. So it's a
double edged sword. The chemo drugs are working but at the cost of my
lung, so the plan when we go back to RM in December will be another CT
scan and then decide what course of action to take with regards to the
chemo drugs. <br />
<br />
Still on a reducing dose of steroids which have completely wrecked my
sleeping patterns and they just pile on the pounds! I'm awake most of the night and am at a loss to
understand how I stay awake during the day! Feel sorry for Kev who wakes
up as soon as I move and then has to put up with me being awake in the
small hours of the night, reading or playing a game on my iPad! Being
off the chemo has given me my old life back, even if it's only for a
short while. I feel well, I'm eating well and enjoying having my
tastebuds and I can even forget I have cancer, just now and then. As the doctor from our
hospice said to me, you get so used to feeling ill, you forget what it's
like to feel normal. How true that is. Plus, my hair is growing back,
albeit a different shade to what I had before, but hey, it's hair!!
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-23093964883501843322014-08-14T06:24:00.000-07:002015-05-15T07:05:07.274-07:00New round of chemo drugs (just for a change)<h3 class="post-title entry-title" itemprop="name">
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It's been a while since I last posted but unfortunately, haven't always felt well enough to sit at the laptop ....<br />
<br />
Found that the original chemo hadn't worked and instead of helping
shrink the cancers, they have actually grown, so am now on a new regime
of drugs on a weekly basis, which basically means that we are up at the
Royal Marsden for about three weeks out of every four, with only one
week off for good behaviour!!<br />
<br />
The new drugs are pretty intense and have knocked me for six but if they
work, then it'll all be worth it. Have a CT scan booked for a couple of
weeks' time to see how things are progressing. We know the prognosis
isn't good; the cancers are incurable but we just go from day to day and
keep everything crossed.<br />
<br />
On a brighter note, I managed to do the Race for Life back in July and
completed the 6k in just over an hour with my daughters and two
friends. It was a baking hot day, which didn't help but we did it and
raised quite a bit of money for a very worthwhile cause.......<br />
<img alt="Race for Life, Southsea" class="size-thumbnail wp-image-3434" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/08/IMG_4119-150x150.png" height="150" width="150" /> Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-52451478515973561892014-07-03T06:20:00.000-07:002015-05-15T07:05:07.298-07:00Hair today, gone tomorrow!So...... back from another trip to the Royal Marsden, this time a two
day stopover, as Tuesday I had my PICC line inserted, which wasn't as
bad as I thought it would be (although I did keep my eyes shut for most
of the procedure!!) Now sporting a very nifty little bandaged accessory
on my left arm :)<br />
<br />
Yesterday was the usual whole day of appointments, apart from having
bloods, which was done through my line on Tuesday. So simple and no
cannulas involved - yay!<br />
<br />
Chemo was also very quick, following the line being cleaned and
re-dressed and was out of the RM at least an hour earlier than we
normally are. Only downside to the day was being told by my doctor that
there are now at least two more nodules found and am now a Stage 4.
Great.<br />
<br />
Last Thursday I went to work with my hair intact, apart from being able
to pull out loads of strands. By Sunday, it was getting pretty obvious
it wasn't going to be hanging around much longer and most of it has now
gone, apart my fringe (helpful) and quite a bit left on top. Thank god I
sorted out my new hair in time, plus my collection of hats/scarves etc!<br />
<br />
Going into work for the first time with my new barnet was a little
nerve-wracking but the only comment I received was from my colleague
asking if I’d been to the hair dresser and that my hair looked so good!
Other than that, I told everyone else who commented. No point keeping
it to myself. Just in case the wind blew it off and then what an idio
I’d look.<br />
<a href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/07/FullSizeRender1.jpg">
<span class="pibfi_pinterest ">
<img alt="FullSizeRender(1)" class="alignleft size-thumbnail wp-image-3465" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/07/FullSizeRender1-150x150.jpg" width="150" />
</span>
</a>My “new hair” is an exact replica of my own hair, only looks sooo
much better! It’s fooled a few people who think it’s my own and who am I
to argue with that? The owner of the hair salon who supplies the hair
is a fellow cancer sufferer so she knows exactly what we’re all going
through when we lose our hair and want to look as “normal” as possible.
Good on you, Chris.<br />
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-57682253922016463572014-06-24T06:18:00.000-07:002015-05-15T07:05:07.301-07:00Summer's here (but I wish it would go away!)<h3 class="post-title entry-title" itemprop="name">
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So, another day of feeling yuk which meant I knew I couldn't go to
work. Fell asleep this afternoon for an hour or so, which I probably
needed as I didn't sleep through last night (again).<br />
<br />
The British summer has really kicked in over the last few days, which is
great but the sticky heat gets a bit much, especially at night.<br />
<br />
Moan, moan, moan – just wish it was a bit cooler. I’m already hit with
hot flushes (oh yes I forgot I had a total hysterectomy a few months’
back which launched me into the menopause. Thank you. On top of
everything else) so the heat does get a bit much. But could be worse, I
suppose. Not sure how, but I’m sure it could …. Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-67899760413357820952014-06-22T06:15:00.000-07:002015-05-15T07:05:07.313-07:00Nausea, nausea, nausea -- oh and not forgetting the ulcers!<h3 class="post-title entry-title" itemprop="name">
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So, there's no pattern to the nausea and retching! I seem to have a
couple of good days followed by a wipe-out day when I don't have the
energy to get off the sofa.<br />
<br />
And then there are the ulcers. I'd read about this lovely side-effect
but really hoped I would avoid them but I've got a couple of ulcers now,
together with sore lips so the pineapple ice-cubes have come into their
own....<br />
<br />
Things are doubly tough at the moment as we visit mum every day in the stroke ward and I have to pretend that everything's ok in my little world. She's too ill to remember that I have cancer and so we play the same game each day. Me, putting on a smile and pretending all is well when I feel like shit and just want to go home, curl up on the settee and sleep. Still, the old acting skills have come into play and it seems to be working ...... <br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
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Can't wait to see what else is in store for me :)<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1MRIoInIdYPigD6lzj7H2ifd3v4H6qNE_RIGdr-wucB3tlIroVyc-oGJUkai1M_noKrP1NEqpWQfAmKc_1Y-3MyxPhZNGtacEaP6Oxv50DQPz54a7VH4vH-4znr3tNIy-K0pXVwzUsHo/s1600/jelly-buttons.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1MRIoInIdYPigD6lzj7H2ifd3v4H6qNE_RIGdr-wucB3tlIroVyc-oGJUkai1M_noKrP1NEqpWQfAmKc_1Y-3MyxPhZNGtacEaP6Oxv50DQPz54a7VH4vH-4znr3tNIy-K0pXVwzUsHo/s1600/jelly-buttons.jpg" /></a></div>
But I did manage to find my jelly sweets at the local market. Bargain. <br />
<br />
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-89606328907800343442014-06-20T06:14:00.000-07:002015-05-15T07:05:07.330-07:00Tastebuds, where are you???<h3 class="post-title entry-title" itemprop="name">
</h3>
<div class="post-header">
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Not only am I having to cope with nausea and retching but now my
tastebuds have taken a holiday! Even when I do fancy something to eat,
what it looks like and what it actually tastes like to me are worlds
apart. Sod this for a game of soldiers!!<br />
<br />
Even plain water has lost its oomph so I've ordered a new Brita filter
jug which should be here today. At least I'll have some decent hydration
that's not full of contaminations. Got enough of those in me at the
moment without adding more .Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-78038992213171748472014-06-19T06:13:00.000-07:002015-05-15T07:05:07.322-07:00Side effects so far ...<h3 class="post-title entry-title" itemprop="name">
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<div class="post-header">
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<span class="pibfi_pinterest " style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;">
<img alt="photo8 150x150 Cancer Journey side effects so far" class="alignleft wp-image-3068 size-thumbnail" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo8-150x150.jpg" title="Cancer Journey side effects so far" width="150" />
</span>After a great first day following chemo, I just know that things are going to change. And it doesn’t take long either …<br />
<br />
Friday I wake up and know immediately that I feel sick. Sick,
nauseous, just yuk. I down my anti-emetics and hope it’ll pass.
Wishful thinking – the whole day’s spent either retching or feeling
crap.<br />
<br />
<br />
<span class="pibfi_pinterest " style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;">
<img alt="ginger tea bags 150x150 Cancer Journey side effects so far" class="alignright size-thumbnail wp-image-3153" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/ginger-tea-bags-150x150.jpg" title="Cancer Journey side effects so far" width="150" />
</span>So, ginger game plan on. I stocked up on teabags and crystallised
ginger before going to London and am glad I did. The ginger helps but
oh god, I’m fed up with the stuff already!<br />
<br />
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Liquorice jelly buttons (the ones you get in allsorts) help too but
the only place I can get these is at our local hospital's shop!! Drinking plenty of
water and tea when I can stomach it but my tastebuds are definitely
changing. My appetite’s disappearing although I’ve found that sometimes
when I think I feel sick, I’m actually hungry but halfway through
eating, I can’t take another mouthful.<br />
<br />
<a href="https://blogger.googleusercontent.com/img/proxy/AVvXsEj6sUN4io9p_ORFsYtuXelDjo0tgf49JIcOAU1aQ41sg6WfXQ_Kn8wKwyH9hGsVb3qZB3RbEYDko2ISDcHFAYJY1UN-6D-J_M3qyh6ct8_hYq1gxD3wCSPR9FdrVWiuhO2aPi0prtDUUrYNlX0PRf2hZYHt-gN-hHDWa_cmP1-wRm8UqGQ206m2xcJFm-N5kqMOTujbDey6Fg=" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img alt="jelly buttons 150x150 Cancer Journey side effects so far" border="0" class="wp-image-3154 size-thumbnail" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/jelly-buttons-150x150.jpg" title="Cancer Journey side effects so far" width="150" /></a>The inside of my mouth seems to have a life of its own now so the
mouthwash I was given has been well used. Also my lovely niece Rebecca
reminded me that pineapple juice is a great antiseptic and I’ve taken
her tip and frozen freshly-juiced pineapple juice cubes ready for when
those dreaded mouth ulcers dare to show their face!<br />
<br />
I’ve been tired for a long, long time but didn’t realise this would
be getting worse. I can sleep for England and being back at work is only
adding to the problem! But I try and stay awake in the evening as long
I can but trying to socialise is now getting to be an effort. I just
love my bed!<br />
<br />
As most people are aware, one of the biggest side effects of chemo is
hair loss. Not everyone loses their hair, it all depends on the
drugs. I was told from the outset that I’d be losing my hair thanks to
the Doxorubicin and even now, it’s starting to come away, a few strands
each time but enough to notice. The whole texture of my hair’s changed
too, so it’s baby shampoo all the way from now on! So how do I feel
about the whole hair loss thing? To be honest, it’s only hair. If it
means I have a better survival rate, then why should I or anyone else
worry about it? Millions of people are going through exactly the same
thing each and every day and it’s just one of the darker sides of cancer
and chemo.
<!-- Blogger automated replacement: "https://images-blogger-opensocial.googleusercontent.com/gadgets/proxy?url=http%3A%2F%2Fwww.justmomsanddaughters.com%2Fwp-content%2Fuploads%2F2014%2F06%2Fjelly-buttons-150x150.jpg&container=blogger&gadget=a&rewriteMime=image%2F*" with "https://blogger.googleusercontent.com/img/proxy/AVvXsEj6sUN4io9p_ORFsYtuXelDjo0tgf49JIcOAU1aQ41sg6WfXQ_Kn8wKwyH9hGsVb3qZB3RbEYDko2ISDcHFAYJY1UN-6D-J_M3qyh6ct8_hYq1gxD3wCSPR9FdrVWiuhO2aPi0prtDUUrYNlX0PRf2hZYHt-gN-hHDWa_cmP1-wRm8UqGQ206m2xcJFm-N5kqMOTujbDey6Fg=" -->Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-29148689243547051722014-06-16T06:08:00.000-07:002015-05-15T07:05:07.280-07:00Hello Royal Marsden ....<h3 class="post-title entry-title" itemprop="name">
</h3>
<div class="post-header">
</div>
Travel up to London Victoria ready for our afternoon appointment at
the Royal Marsden. Just up the road from the hospital, I decide a glass
of wine would be in order. And we toasted to kickin' cancer's butt with a
large one!<br />
<div class="mceTemp">
<dl class="wp-caption alignright" data-mce-style="width: 160px;" id="attachment_3112" style="width: 160px;">
<dt class="wp-caption-dt"><a data-mce-href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo3.jpg" href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo3.jpg"><img alt="Kickin' cancer's butt" class="size-thumbnail wp-image-3112" data-mce-src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo3-150x150.jpg" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo3-150x150.jpg" width="150" /></a></dt>
<dd class="wp-caption-dd">Kickin' cancer's butt</dd></dl>
</div>
Good
thing we are fortified as there is, yet again, more bad news. The
cancer has also spread to my liver and it's pretty serious. We ask and
get answered, all our questions, nothing's too much trouble, we're given
leaflets on rare sarcomas, keyworker contact numbers .... Chemo is
discussed and we decide this is the next step forward. I'm asked if I
would like to have chemo locally or come up to RM every three weeks. By
the time we leave, our minds are made up. Yes, it's a lot of travelling,
especially when I start feeling really ill but there is no comparison
to the care we're receiving from RM. Anyone who's walked through their
doors can't fail to be impressed by the calm, positive attitude of
everyone working there.<br />
<div class="mceTemp">
<dl class="wp-caption alignleft" data-mce-style="width: 160px;" id="attachment_3114" style="width: 160px;">
<dt class="wp-caption-dt"><a data-mce-href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo-2.jpg" href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo-2.jpg"><img alt="We're going to get to know this place SO well!" class="size-thumbnail wp-image-3114" data-mce-src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo-2-150x150.jpg" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/photo-2-150x150.jpg" width="150" /></a></dt>
<dd class="wp-caption-dd">We're going to get to know this place SO well!</dd></dl>
</div>
We
are the last patients at the RM when we finally leave to catch the Tube
back to our hotel and I can't speak for Kev, but I feel as if it's all
happening to someone else. We now know the true extent of what's
happening to me and what's been missed over the last two years and we
are devastated. And angry.
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-41471852934200879072014-06-12T06:07:00.000-07:002015-05-15T07:05:07.286-07:00Chemo, Day 1 Aftermath .....<h3 class="post-title entry-title" itemprop="name">
</h3>
<div class="post-header">
</div>
Travelling back from London last night, I was exhausted but glad
things went so well. I felt ok and slept the whole night, thanks to the
sleeping tablets given to me by my consultant at RM. I've had so many
sleepless nights, they're beginning to catch up with me so having
something to help is a real bonus.<br />
<a data-mce-href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/cider-2.jpg" href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/cider-2.jpg"><img alt="cider" class="alignleft size-thumbnail wp-image-3140" data-mce-src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/cider-2-150x150.jpg" height="150" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/cider-2-150x150.jpg" width="150" /></a>So
I wake this morning wondering what's going to hit me. Nothing. I feel
totally normal, I go out to lunch by the beach with a couple of friends
and sit in the shade with a cider, followed by a wine. I know this is
the calm before the storm so I make the most of it while I can. I'n not naive enough to think that I'm going to get off light ....
Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0tag:blogger.com,1999:blog-758804801072482478.post-46100892827777860502014-06-11T06:10:00.000-07:002015-05-15T07:05:07.292-07:00Chemo Round One<h3 class="post-title entry-title" itemprop="name">
<a href="http://cancerjourney58.blogspot.co.uk/2014/06/chemo-round-one.html">Chemo Round One</a>
</h3>
<div class="post-header">
</div>
Victoria-bound
again, this time for my first day of treatment! Due to the last minute
arrangements, we can't get booked into our usual Premier Inn in South
Kensington, so I've had to bite the bullet and book a cheapo hotel not
far from the hospital. From the price, we know it's going to be pretty
dire but there's nothing else available at such short notice. And it's
only for one night ....<br />
<br />
The hotel's not quite as bad as we thought
(thank god we won't be here all day!!!) although the continental
breakfast cheese was stuck to the plate, forcing Kev to ram his fork
into the slices, in a desperate bid to upend at least one slice! Glad
to leave our case in storage and head off to the Tube!<br />
<br />
My
timetable has been planned pretty methodically: Bloods 10.00,
echocardiogram 10.30, doctor 11.50 then chemo 2.00. This is when we
find out that things don't always run to plan! First problem is trying
to get bloods from me. My veins won't play and it takes three attempts
before the necessary tube is extracted from the back of my hand! The
echo shows my heart is 100% healthy, which is great as it means I can go
ahead with the chemo, provided my bloods are ok. In the gap between
the echo and seeing the doctor, we head outside back into South Ken;
It's boiling hot, there's the London buzz in the air which I love and we
have plenty of time to spare before heading back for chemo.<br />
<br />
This
is where everyone plays the waiting game. The chemo suite is large,
bright and airy with comfortable reclining chairs. It's just a matter
of getting in there! In the end, I only have to wait just over an hour
and a half before I'm called in. And then I myself am the cause of more
delays for other patients! Yep, it's down to those old cannulas again!
No cannula, no chemo. My poor nurse has three attempts, on both my arms
and hands without success, even resorting to putting my arms into a
yellow sharps bucket of hot water to soften my veins. Chaos erupts when
another young nurse trips over the bucket which is on the floor,
spilling a gallon of hot water everywhere! Kev is on his knees with
towels, helping to mop up the river of water which has gone everywhere.
Meanwhile, I am reclining back in my chair, just praying they can get
the needle in so we can get going with the chemo! Finally, another nurse
is called over who quickly and expertly inserts the cannula and we are
away!<br />
<br />
The actual chemo seems a bit of an anti-climax after all the
excitement. Half an hour's worth of bright pink Doxorubicin quickly
and efficiently pumped into my veins from two large vials, followed by a
few minutes of flushing and we're all done. One quirky note to end
with; your pee is bright ponk straight away. What a party piece!<br />
<br />
Knowing
the problems I have with my veins, I'm having a PICC line inserted the
day before my next chemo, which should help as all bloods and chemo can
be done through the line.<br />
<a data-mce-href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/picc-line.jpg" href="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/picc-line.jpg"><img alt="picc line" class="alignright size-thumbnail wp-image-3133" data-mce-src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/picc-line-150x150.jpg" src="http://www.justmomsanddaughters.com/wp-content/uploads/2014/06/picc-line-150x150.jpg" height="150" width="150" /></a><br />
Round One - Done!Julie58http://www.blogger.com/profile/08489384539317876250noreply@blogger.com0